Monday, March 15, 2010

1st of Many

Good Morning Everyone,

First let me say thank you to all of you for your continued prayers and support for Daddy during his illness. There are so many people wanting updates so I decided this would be the easiest way to keep everybody updated. I wish I would have started on day one, but we will summarize up til today and go from there.
As of right now we know the cancer is in his lung(we think this is the primary source) liver, trachea, bones and lymph nodes. So needless to say we are fighting a doozie!! It all started when he was having bad back pain all over his back. That is when he went to Dr for a series of tests that found the cancer. On March 3 we started him on a Fentnyl patch for pain and Hydrocodone at night to help him sleep. This started a downward spiral that none of us were expecting so soon. He became very disoriented, lost his appetite and pretty much slept all the time. Finally after a week of it getting worse, we called the Dr and he told us to pull the patch and up the Hydrocodone. We did on March 10 and he had a good day. He ate two full tacos and stayed up to watch a couple of TV shows. Then after that, downhill we went again. He started eating less and throwing up everything he ate. So on Saturday morning March 13, we brought him into St Pats. He was extremely dehydrated and in need of some major nourishment. They hooked him up IV with fluids. Finally that night we got to see the oncologist, Dr Bergeron. He was wonderful. He didnt have any of Daddys records yet but he listened to everything we had been going through and started the ball rolling. He changed his pain med to morphene, ordered blood work and was ordering a brain scan to check for problems in the brain. Bloodwork came back within the hour(which is now midnight) and he let us know immediately(did i mention we loved him!!) Showed his calcium and potassium levels are elevated. Bergeron thinks this is causing the disorientation so we canceled brain scan for now. Sped up liquids to lower levels. Hasnt worked yet but we are still fighting. He got a stomach tube for nutrition and catheter inserted yesterday.
This morning he is talking a little better, not perfect but little more lucid. Waiting now on ultrasound for kidneys and bladder. Thinking kidneys arent functioning as good as needed.
Bergeron will be here this morning but not sure if he has biopsy results. Once he has those we can talk treatment. But cant start treatment until we get strength back up. Vicious cycle that we are all ready to get off.


***Bergeron just came back in. Biopsy back and its all confirmed.. Primary source is lung. Without chemo we are looking at weeks, with chemo, depending on reaction to it we hopefully can get to a year or two. So not the news we wanted to hear but now we focus on getting his kidney function back so we can start chemo.

Sorry this one is long, but I will start to update daily or more than once a day. Thank you ALL for your support. We couldnt make it without yall!!! Please save the blog to your favorites, as this is how I will continue to update. Thanks to Lisa Marie for this great idea. :)

2 comments:

  1. All of my heart and prayers to you and your family. I know that things are so hard right now. Your days will be long and worry-some, but i pray for you that you are able to grasp all you can and hold on to as much as you can. From here on out so many trials and thoughts will run thru your mind,and fill you days. It is okay you will have all of those moments to keep you strong. I also pray for you that the Lord himself walk beside you and your kids to catch you each time you hear words that break your heart and to hold your hand as you hold your dads. I am here for you, i am a call away. I will be there in a moment if you need me, dont hesitate to call.Love ya girl

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  2. Leslie, thanks so much for the long post. We really do want to keep up with how things are going. glad our family queen of technology, Lisamarie, recommended this.

    Frank, we love you. You are in our thoughts and prayers daily. Sounds like you all feel really good about Dr. Bergeron. So important to like and feel poisitive about your caregiver. Please know we are with you in spirit.

    Take care. Kim and Dave

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